“I’m Down to My Skin and Bone”

This week has been tough. I’ve never done well with the change of the seasons and that’s what this week has felt like to me. Cooler weather can be fun, but we’re in that odd zone where if I go out side and I wear too little, I’m very cold, and if I wear just a little too much, I sweat profusely. Blah. I’m not a fan. But I’ll adjust. I always do.

The pain from my minor surgery on the 18th intensified on Tuesday the 22nd & Wednesday the 23rd, but seemed to disappear completely on the Thursday 24th, and remained gone for most of Friday the 25th before returning that night. Not so bad as it was but not as good as before. We’ll see how it goes today.

I got out for another walk on Wednesday, but I didn’t feel like walking to the park so I walked to an grocery store on Broadway that I used to get my food at every week, for years, only it’s not been years since I stepped into the place. I was curious what the prices were for foods that I usually have delivered these days, and it did seem to suggest that my deliveries are a bargain. I wore my old Hellraiser shirt that I bought in the 90s from Middle Earth in Ann Arbor, Michigan. My friends Paul & Darla had both gotten the same shirt from there. I’m still in touch with Paul and Darla, and Darla says she thinks she still has this shirt too, but Middle Earth has been gone for years.

Outside the grocery store there was an open patch in the sidewalk with flowers growing – which isn’t uncommon in New York. But what is very uncommon, is for those flowers to be Sunflowers. Giant yellow sunshine. We used to have have them growing in our garden on our farm in Michigan and seeing them here in the city made me smile.

I took the long way home, past one of the impressive churches in The Heights. When I got home I showered, and later put on a long sleeve shirt because the bedroom was chilly. Aaron said that I looked cute.

On Thursday I chopped up more Zucchini for our smoothies. It’s weird. A few months ago I’d never had a zucchini and now I have some every day. I can’t say that I crave them, because I don’t taste them at all, but I do like that I get nutrients from the various foods that I eat now, including this one.

Later I went for another walk, to another grocery store and compared prices again. Then, as before, I walked here and there. I ended up at 168th and took the train back to 181st, where I bought some whole wheat pita bread. On the train, a young woman approached me. When people come at me in public I still have this urge to put my guard up, because when people did this in Michigan they were invariably rude. In New York, when people approach me it is always with a compliment. This woman said she was sorry for staring but that my eyeliner was incredible and could I tell her what I use. I thanked her for the compliment and told her that I didn’t know what brand it was because I never pay attention. I buy 3 or 4 eyeliners from a beauty shop less than a block from where I live (she knew the one as soon as I listed my address) and I get that many because they don’t let you buy 1 with a credit card. I told her that I suspect it’s just practice, because I’m old. lol But I wished I’d had a brand to give her as I feel like I didn’t give her anything in value in return for the compliment, other than my thanks. Maybe I made her smile, and that’s something.

I was annoyed most of that day. The season finale of Strange New Worlds is out and the re-release of Avengers: Endgame (Encore), which has new footage and I’d been looking forward to both for months. We initially had plans to see both but I cancelled the Avengers due to my pain levels a few days before – and now I was painless, but having to dodge spoilers, which I hate doing. And SNW, has been so aimless the last few seasons that I’ve started to dread watching it, but the season finale is something I’ve been looking forward to – but to get there, I need to find time to watch 2 other episodes with Aaron and I just didn’t feel up to it. So, minor annoyances, but annoyances none the less. We have tickets to see Avengers: Endgame: Encore on at 1pm today and we can also try to get through Trek.

Friday I felt frazzled. Worn out. Low energy. I’d maintained weight – which is to say, that I hadn’t lost any, but that’s I’d also not gained any, which felt odd. Like I was treading water, or like nothing I was doing mattered. I’d actually gained some weight early in the week, which was annoying, but then I’d lost some of it…but now…nothing. The weather wasn’t fun and, after waking up at 3am, I worked on my website for something like 12 hours with no breaks. I just lost myself in working on a Star Wars viewing order, which is frustrating because I don’t want to share it until it is done, and it’s just taking a lot of time and energy, which I didn’t suspect. I have all these things as Google Sheets, but putting all that information into a new format is tricky and time consuming and my photoshop program was fucking with me for some reason. It was obnoxious. In the end I cranked out a page for the 4 Cat People films so I could post something, and then watched the season premiere of American Horror Story (S13E01 “13”) which was fine, but I feel like this season (which seems just as uneven as most of Ryan Murphy’s work) will land better if I re-watch what I’ve seen (“Freak Show”, “Asylum”, “NYC”, “Roanoke”, “Murder House” + bits of “1984”, “Hotel”, “Double Feature”, “Delicate”, & “Apocalypse”) and also watch what I’ve missed (preferably in the new order I’ve come up with) – as it’s essentially a sequel to everything else they’ve already done. I just don’t know that I can get through all of that. Later, my pain returned. Not as bad as before, but worse than it was. I played some Zelda, (which I’ve been finding very relaxing), read a bit and then went to sleep.

I woke up a few times but got back to sleep. I finally got up around 6am. I weighed myself and was very surprised to see that I’d lost weight again. I would have thought it was the reverse. But I’m actually lower than I have been in years. Again. I don’t like how my mood is so easily affected by my weight. I’ve never been like this. I mean, for years I struggled to keep weight on, and now that I’m losing it, with much more success than others that are close to me, I should be happier. I feel accomplished, but I also don’t really understand some of it. This week, my energy hasn’t been as good as it has at other times in this journey – I’ve exercised less. So I’m not clear how I’m losing weight. I guess I did have a lot of snacks last week, which I’ve mostly curtailed this week, but I wouldn’t imagine it having such a huge effect. I’m at a loss. I don’t understand. And I’d like to understand. I think if I understood how this all worked I could obsess over it less.

Today’s journal entry song quote is from “Ease”, a song by Australian singer Troye Sivan, from his 2015 first studio album “Blue Neighborhood”, which I purchased the day it was released, having randomly discovered his 2014 EP “Happy Little Pill”, which quickly became a favorite. I really only knew him as the kid who’d played James “Logan” Howlett, aka Wolverine, in the 2009 film “X-Men Origins: Wolverine”. But I liked what I heard and I quickly became a fan. I heard something that reminded me of him the other day and I’ve been listening to “Blue Neighborhood” while I’ve been walking this week; it makes me nostalgic for traveling around Manhattan, because I used to listen to it on the train a lot. I don’t usually just play a single song from the album, I usually listen to the whole thing, so it was difficult picking one today, as they’re all sort of swirling in my head. Music gets stuck in my head all the time – sometimes to a degree that annoys me. I’m sure that others experience this, but I also think that most people don’t have this nearly constant soundtrack going on in there heads, or maybe not to the same degree. It feels like a problem. Intrusive thoughts. Ugh.

“All the Black Is Really White, If You Believe It”

The ways in which my diet has drastically changed in the last 5 months still astounds me, after smaller changes in the last 2 years. I used to have an ice cream shake every day. Sometimes (often) more than one. This is understandable, given that my stomach is partially paralyzed (and has been since August 13, 2001) and, well, that kind of cold, sweet desert, is helpful in such situations for all kinds of reasons that I don’t need to go into here. But I really don’t miss it at all. The smoothies I have instead, even though they’re quite basic compared to most people’s (I suspect), are packed with servings of fruit and vegetables. They’re also delicious and depending on my mood, often feature coffee. This morning I had a smoothie which contained cherries and zucchini. A short while later I snacked on a slice of Dave’s Killer Thin Sliced Good Seed bread (buttered and sprinkled with chia seeds), half a kiwi, a few pumpkin seeds, 3 or 4 plantain chips, a small sampling of nuts (peanuts, pecans, almonds, pistachios & cashews), roasted seaweed snacks (Seaweed, Sunflower Oil, Sea Salt), some green olives + 2 or 3 blue corn chips. That last item, which is very rare for me these days, would have been a main course in the past when I basically survived on chips, chocolate / candy and Boost protein drinks – oh, and lots of pizza. This morning, I drank water with these snacks. I liked fruit and veggies before, but I’ve never eaten them in such abundance or so consistently.

Also, my Post Traumatic Stress Disorder is heavily tied to food, or the lack thereof. When I was a kid, I suffered horrible experiences and I stopped eating. I never again sat at the kitchen table with my family and had a meal with them. I was 4 or 5. When my step-father married my mother, not knowing what I had suffered, he insisted I eat with them and I refused. He told me I would eat with them or not at all. 3 weeks later he took me to McDonalds and I gladly wolfed down my fries there. My not eating was a silent cry for help, which nobody ever answered. And now I’m answering the call, for myself, for the child I was then, who is still very much alive inside of me. I’m doing much better at that now, but it is something I’ve been struggling to do for 20 years, realizing that I could feed him back in 2006, I did my best but there were a lot of failures along the way. I keep him in my thoughts and touch base with him, almost like he’s another person, because when I don’t, and that broken circuit connects at random, it can be so overwhelming. I used to black out and wake up other places, not knowing how I got there. I had a lot of memory loss. I used to self harm as a coping strategy, which I have mostly gotten rid of. I say mostly because the urge still sometimes returns, though I don’t actually remember the last time I cut myself. It used to be daily. When I moved to New York, the first goal I designated for myself with my new therapist was that I wanted to find other ways to cope. I’ve never liked the idea of removing cutting from the list of coping skills that I’ve acquired – because as damaging as it obviously is, it has also been effective at keeping me alive – but my goal was to find new ways to deal, so that cutting wasn’t my go-to-strategy. I wanted options. And I worked at it. And I found them. And those new skills became a kind of muscle memory that I do without even thinking about it most times. And the urge to cut is now so low on the list of things I can do that it seldom even enters my brain, for which I’m grateful. I’m proud of the work I’ve done on that over the years, and like the change in eating, it feels like something I’ve earned, so it’s very satisfying to see these changes bearing fruit – that I would probably put in a smoothie these days! lol

So after writing all that I wrote a new poem, which can hardly be a surprise. Which is actually a really good example of how I touch base with and assure Little Jason.

I worked on what will eventually be a Doctor Whoniverse order (featuring the various spin-offs and the Big Finish audios) but it’s got a long way to go, and I’m starting to yawn a lot, so I think I’m going to try to get that extra sleep in now.

This morning’s journal entry title song quote is from “In This Twilight” by Nine Inch Nails from the 2007 concept album “Year Zero”. I used to have lyrics from the song, which I found comforting and inspiring, on my bedroom ceiling.







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