“When You Get Out of Bed, Don’t End Up Stranded”

I woke up with a migraine. I figured this meant it was raining and it does look like there was a storm. I guess it’s ironic that “Mandolin Rain” was stuck in my head before I went to bed! lol I wouldn’t have even remembered that except the title came up when I came to write this entry. I find it amusing at least.

I got up and took some painkiller. I was taking a lot of painkiller for a long time. I’ve cut way back because it often doesn’t help and is also bad for you, but sometimes I can’t even think of anything else. I’ve been getting migraines since the fourth grade. In order to qualify to be seen by a specialist in New York I needed to have at least 2 or 3 different triggers but as it turns out, I have all of them. My mother had them, often worse than me, I suspect, but she also had them less often, thankfully. So there’s a hereditary element. Then I also have really bad TMJ, which can trigger them. It’s fucked up actually because if I do anything with my mouth for long it starts to hurt. That means laughing, talking, eating / chewing and giving head can all hurt me and often do. Back in 2009 the tension in my jaw was so bad that my jaw locked for 3 months. The dental specialist I saw told me it would never open again, and then seemed shocked when I wept – that man had no fucking bedside manner. But I was able to see another specialist who got my jaw to open in a single session with some simple exercises. He explained that my jaw would be eve more sensitive after that point, as if I’d gotten a sports injury and couldn’t play football anymore. Changes in weather also trigger my migraines. Lack of nutrition can affect migraines and since I have a very complicated relationship with food under the best of circumstances + my stomach issues, it can be very difficult for me to get all the nutrition that I need and that’s been going on since I was 4 years old. Stress / tension can cause them and I definitely have those! But I really have worked to address each of these issues as best as I can. And because of that work I now have about half the number of migraines in a week than I used to have, and sometimes I even go more than a week without one, which I never thought would ever be possible.

Despite the migraine and my tummy being grumbly, I wanted to cuddle with Aaron for a bit, so I did that after taking the meds and putting ice on my neck for a bit. He knew I wasn’t feeling well but we were both grateful for the cuddles and we said as much when I eventually had to get up. We’re very affectionate. We always hold hands in public and often in private. We’ve had sex twice in the last week, which I think is pretty good since we’ve been together almost 15 years. It’s been a priority for me this year actually. We went for a long patch with almost no sex between November 2019 & 2025. We would do something every now and again, but age, our long relationship and the pandemic all had taken their toll on us. We were lucky to have each other during the lockdowns, but being together 24/7 we needed to find time for ourselves and learned to stay on opposite ends of our apartment to keep our sanity in check. It was hard to break that pattern once it was in place, and I’m not sure it is entirely gone, but we’ve made great strides on improving the situation. And our sex life is part of that. We’ve hooked up about 10 times this year so far, which is likely more sex than we’ve had in the last several years combined. We try to prioritize our relationship, is what I’m saying, and we generally have very positive results. And when we don’t, we are also very understanding and very forgiving. Hopefully this remains true.

After getting out of bed I immediately made a smoothie. Blueberries, chocolate Boost, protein powder, Benefiber, coffee grounds, and a splash of oat milk. I figured the caffeine might help and I think it has. Caffeine and pain killer. At least I feel better than I did. And for once, Aaron hasn’t turned on all the lights. Probably because he knows that my head is hurting.

Today is Aaron’s last day at home for awhile. He’s flying to Los Angeles tomorrow and he won’t be home until early Monday morning, nearly an entire week. I don’t mind being on my own, and I won’t be alone the whole time. My aide Celine is here between 4 & 6 every weekday, and I will try to make plans with some friends. I do sometimes have trouble sleeping without Aaron. Partially because it feels weird to not have his side of the bed occupied and partially because he’s such a stickler for his bedtime that it helps me force myself to sleep at a regular time instead of watching hours of TV in bed as I often end up doing in his absence.

I might work on getting some of my viewing orders here on Gothboy 2.0 – I’m still stumbling a bit with how to set this or that new thing up, but I’ve only been at this for 2 weeks. I seem to have this journal / blog thing down though, which is wonderful. I’ve missed doing this. And my Facebook posts only ever went so far. I’m actually hoping that having this website will help me break away from Facebook more and more. I’ve already begun transferring elements of my profile there to this new location. Wish me luck!

“Til They Play the Last Song”

I had a dream last night that I was fucking Aaron, which, for the record, I have never done. He’s a top. I’m a bottom. That’s how it goes. But in the dream we both liked it.

Yesterday I started watching some stuff that I’ve wanted to see for a long time but haven’t gotten around to. “Daredevil” Season 3 has been on the backburner for 7.5 years, but with the new season of “Daredevil: Born Again” finally getting exceptionally good, and with plenty of ties to the old show, I’m finally ready to see it. I also started watching “Tales of the City”. I’ve seen the original miniseries once, but it’s been a long time, and I’ve never seen the 3 sequel seasons, but I have access to all of them now, so here we go. I’m also still watching a lot of other things like “The Lord of the Rings: The Rings of Power”, which I hopefully won’t quit again (as I have done twice in the past) because I really am enjoying it now, I just have a hard time staying focused on any one thing.

I’d write more but I should get to bed. Aaron actually told me earlier that he sleeps better when I’m in there with him, which he’s never told me before, so I didn’t know. I sometimes sleep better on my own, but when he’s away on trips and things, I do miss him more when he’s not in the bed and won’t be returning for days at a time.

I have “Mandolin Rain” stuck in my head. I’m not sure why. I don’t mind though, because I love that song. I used to have the album as a cassette tape.

“Let’s Go Outside”

So, my “date” with Glenn went well, despite several delays. I made it outside again. I took the train despite not having my music (my headphones didn’t charge for some reason). And all was eventually right with the world. I even ate. There was wonderful conversation, a lot of laughter and some real emotion. Followed by a terrific show at 54 Below, where we both knew many of the people involved. It was great fun. And the music they played before and after the show was surprisingly goth, with songs by Siouxsie and the Banshees and Type O Negative. Interesting. I was very tired by the end of the night and we were driving several people back to the Heights with us so we said goodnight to Glenn and Christian and so many others. But it was a wonderful night.

I was a little bummed that there was no Avengers: Doomsday trailer waiting at home for me, but they did show a trailer at CinemaCon; they just haven’t released it to the public and I’m not sure they ever will. The first trailer for Avengers: Endgame was shown at a con and they never ever released that trailer publically. We’ll see.

It was revealed that Kathryn Newton will be returning as Cassie Lang / Stature in “Avengers: Doomsday” – which we didn’t know. And young Wesley Holloway has been announced for the film and is rumored to be playing Steve and Peggy’s son.

They did release the final trailer for The Mandalorian & Grogu, which I think looks fantastic!

I need to go finish getting ready for bed. I’m dead tired.

“The Circus We’re In”

slept very well. Then I cuddled with Aaron for 2 hours. I feel good. But I dreaded reading last night’s post as I really was tripping – but hey, it’s not bad! I have an on and off addiction to sleeping pills. I’ve been cutting back a bit. And this has made them hit me much harder. I say that like I’m tripping acid, and I can only imagine how hard that would hit me because I’m very much a lightweight. When Ambien hits me hard I see pretty colors and if I’m reading, the words drift off the page. That was happening last night while I was typing and it was like the words were floating out of the screen, which is when I realized what was happening. lol It hasn’t hit me like that in years.

I really am into Tori Amos’s “From the Choirgirl Hotel”, which again, was an album I listened to a lot when I was creating the original gothboy.com website. I keep going back to it. She has a new album that I haven’t listened too yet, but I’m content with this one for now.

I think I’m losing weight. I haven’t lost a lot, I’m sure, but I feel like I’m losing weight, which was a goal of mine, but not one that I’ve given a lot of thought to. I have a very complicated relationship with food. I have PTSD which is tied into food. And beyond that I was also raised in an environment where my education related to food was far from normal. And on top of all of that, I have idiopathic gastroparesis, or at least I’ve been told that I do – there is another diagnosis which I can’t remember, but they’re similar and it actually might be both. So it’s complicated.

I am, however, making healthier choices of late. I was eating a lot of ice cream over the last several years. I think 3 quarts a week was my average? I’ve totally cut ice cream from my diet, which doesn’t mean I won’t potentially have it at Dairy Queen or something, but that I don’t keep any at home. Instead I drink smoothies, which means I replaced something unhealthy with something far more useful, which gives me everything I got from the ice cream but with none of the negative side effects. I’ve also cut way back on bread. I’m still eating bread, but less. Less cheese as well. For over a year I added cheese to nearly everything. To be fair, I was also adding chia seeds and flax seeds, but now I’m eating less cheese and just as many of the seeds. I also started buying fresh kiwi and snacking on that, which I’d wanted to do for years, which must sound strange, but again, my relationship with food is complicated. Oh, and the smoothies mean I’m having fruit every day! Which was definitely NOT the case before. And beyond the food choices, I’m starting to get out a lot more. Since the pandemic in 2020, I’ve mostly been a hermit when I’m in New York. I would maybe leave home 4 or 5 times a month, but there were times when I wouldn’t go outside for weeks at a time. But it is now April 16 and I’ve been outside 9 times this month and I have plans to go out tonight. I went out on the 14th as well, to pick up a pizza. Cheese and bread! But again, I’m eating far less and a healthier variety. For about a year we’ve been getting Little Caesars where we get 2 pizzas, one of them being the pretzel crust, which has so much salt that it has a warning on it! We had them delivered, always, so due to the cost we had to spend more to save a little on the delivery. But now I’m walking to the store, picking up one pizza, not two, and not getting the pretzel crust – saving money, getting exercise, eating less and eating healthier. And still having a pizza. But I have a slice, maybe two a day so it lasts just under a week.

Speaking of outside. I went for a walk yesterday. I was planning on going to my favorite park, Fort Tryon, but it was a bit later than I planned on and then just as I was getting ready to leave there were a flurry of messages from Aaron and Glenn about tonight’s events. I did try to go to the park but decided I’d take the train rather than walk there, only the train was late and I decided to just walk home so I could get myself a ticket to a show tonight, if I needed one. I stopped and got those kiwis on the way home at a new neighborhood market. I got all the things ready. I had a smoothie. Later as a snack I had some green olives, pecans, & sunflower seeds. I played some Zelda (Breath of the Wild) and then got ready for bed, which is when I posted last night.

Aaron and I have been chatting while he gets ready for work. He just looked over my shoulder and saw how I was organizing this post and told me he liked what I was doing: “I see what you’re doing. I’m picking up what you’re putting down. That’s a very handsome man on that subway!” lol

I’m looking forward to going out tonight. I’ll likely leave here shortly after 6. I’m meeting Glenn for a reservation at Serafina in midtown at 7. Then we need to be at 54 Below at 9, for the 9:30 show; the venue is just a few blocks away so we should be fine. And then the show is from 9:30 to 10:30 with another show at 11 so the venue needs to clear out quickly, and I’ll catch a ride home with Aaron and another one of the judges.

Right. So after Glenn asked if we could meet today, Aaron told me our friend Christian was having a concert that night but I figured I should keep my plans with Glenn so I told Aaron I wasn’t going. Then yesterday Glenn asked if I’d like to go to that same show with him! It felt fated at that point. I mean, Glenn didn’t even realize that I knew Christian or that Aaron would be there! lol It’s so funny. But I’m happy it worked out this way. Aaron and I chilled with Christian last month after a Stonewall Chorale concert.

I’ve never hung out with Glenn one on one, which seems odd, in retrospect. I’ve hung out with his ex-wife a few times (who I adore). I usually see Glenn at parties or shows, but there have been smaller gatherings. I met him in passing in 2014, but didn’t officially meet him until August of that year, when we saw him in “The Magic Flute” on Martha’s Vineyard, which was my first opera; I just saw my 14th opera a few weeks ago. We stayed in the same house. Aaron, Glenn, his kids, and there were others there too. We swam in the ocean, near where “Jaws” was filmed. This was the weekend of August 1st, 2014. I know because Aaron and I always try to see the new Marvel films on opening night and we missed the opening of “Guardians of the Galaxy” to be on the island. Glenn and islands. I hadn’t thought of that before. We met in passing in Manhattan, then Martha’s Vineyard, and we’ve visited him twice on Mackinac Island, where his family has a home. Funny.

Anyways, I’m excited for tonight. But, speaking of Marvel, tonight Marvel will be presenting at CinemaCon and I was hoping to just sit at home and take in the news, but I’m skipping Marvel to chill with Glenn and company. History repeating itself. lol

“When I See You Again…”

Wednesday was all about recovering. Taking more pictures. Dreaming strange dreams. Making plans for tomorrow. It turns out that I’m going to Christian’s show afterall. And maybe I should’t have taken my sleeping pills before trying to write this because I am TRIPPING.

Anyways, I had a good day. I ate healthy stuff. Made some cool decisions. And now it’s time for bed.

Daredevil has been Born Again!

I woke up early yesterday morning. I watched Star Wars: Maul – Shadow Lord S01E03 (“Chapter 3: Whispers in the Unknown”) and started S01E04 (“Chapter 4: Pride and Vengeance”) before getting distracted by a stray thought about how my sister Janice recently told me that she doesn’t enjoy Star Wars much, which I thought was odd. But then I remembered that I didn’t like it much either until I started reading the books. And then watching The Clone Wars and the other shows as they were released and I think that’s key for me, because that’s where all the character development really happens. I mean, there are so many background characters who just die without being named on screen in “Revenge of the Sith” but The Clone Wars develops all of those characters so losing them because far more tragic. That kind of thing really helped. So I started making a list for her of the things to watch, which I worked on for like 40 minutes before stopping, realizing that my sister would never watch this stuff! lol

I returned to bed soon after to cuddle with Aaron before he left for work. Later, I took some photos with my once fancy, but 20 year old camera. I went to therapy. I read the news. I walked to Little Caesars for a pizza. I talked on the phone with my cousin Katie, my friend Mark Adams and finally my grandmother. Later I snapped a few more pictures and started getting ready for bed. I still haven’t gone to the bedroom though because my sleeping medication hasn’t really been working well the last few nights which means I need to give it a break. It will good for me. But it also means I can’t just fall asleep quickly and so I’m awake. So I watched the new Daredevil episode.

Daredevil: Born Again. Season 1 was a mixed bag which I felt was due to creative issues behind the scenes, so I cut them some slack. I was assured that Season 2 would be the series at its best, only to have the first 3 episodes leave me disappointed again. But episodes 4 & 5 have been incredible! These 2 episodes have easily been the best of the entire series to date. I cried. There are 3 more episodes this season and Season 3 is filming now, likely to be released about a year from now.

I have the Star Wars episode to finish. I have 2 more episodes in Season 1 of The Lord of the Rings: The Rings of Power. I have one more season to watch of His Dark Materials. Euphoria Season 3 started on Sunday but I think I might wait and binge that when it’s finished. There are many shows that I’ve started and not finished, which I’d like to, it has just all piled up now over years that I don’t know that I ever will get to a lot of it.

I read the news out of Cinemacon. So many release dates announced. So much movie news in the last 48 hours. I love this stuff. And Disney is closing out the convention on Thursday, likely with news of “Avengers: Doomsday”, so I’m looking forward to that.

But I am actually getting tired. I may try to sleep.

“With or without words, I’ll confide everything”

I spent all day yesterday cleaning. It started with me looking for my camera, which had been packed up late last summer when our apartment was being remodeled and we needed to be elsewhere. Many of those boxes have been unpacked since then but there were still a dozen or so that had lingered around the apartment. I actually found the camera in about 20 minutes but I had energy and I felt like I was on a roll. Plus, looking around at all the clutter, it all seemed to be things I could do on my own.

I like to clean on my own. I actually hate having people around when I clean. Sometimes I listen to loud music or dance while I’m doing it. But even when I don’t, I’m a very disorganized person and trying to organize things takes a lot of brain power, which is diminished when I need to stop and talk to someone about what I’m doing every 5 to 10 minutes. Aaron likes cleaning with me because he is very good at organizing and delegating, which I respect, but his delegating, when I’m pushing my limits, can feel like he’s ordering me to do tasks, even when he’s very polite about it, so I get frustrated really quickly. I’d rather just do it on my own.

Having said all of that, I was quite happy when my aide arrived for the day. My aide, Celine, works with me from 2 to 6 every week day. Often, due to my disability, I don’t have the energy I used yesterday. And if I eat, I’m pretty much down for the count. So I didn’t eat. I drank a lot of fluids though, which I should always do, but again, when I eat and drink a lot, it can get be disastrous.

Anyways, I cleaned everything on my own. I made piles of garbage and cardboard and such – which my aide kindly took out for me. I told her she was an angel, because if I’d had to do that I’d have either put it off until today or I’d have collapsed. She also made my bed, did a load of laundry and picked up a prescription for me. Bless her. Together we made everything look so much better!

Before:

After:

After all that, I showered and ate a relatively large meal. I had an omelette with chia seeds, flax seeds, spices and three cheeses. I drank water. I worked on my website for a bit but I was getting tired pretty quickly. Not only had been working all day but I hadn’t slept great the night before. I considered fighting through it but I started getting a migraine and decided I’d rather be asleep. It took me longer to get to sleep than I expected but once I was in I slept a little under 7 hours. I got up and had a snack (olives) and later went back to bed to get some Aaron cuddles before he had to leave for work. He just walked out the door as I was typing this. He usually works at home these days but needs to be on site most of this week and then he’s off to L.A. for another work trip, so our time together will be relatively limited.

“Remind Me What It Feels Like”

I’m trying to stay awake. I have stuff that I need / want to do that involves use of the TV, which Aaron uses on the weekends and evenings when he’s home, almost constantly. He plays a lot of video games and watches a lot of stuff to unwind. I could have used a smaller monitor but I haven’t wanted to. Plus, if the mood hits me, it’s easier for me to write when there aren’t a lot of distractions.

We had a good Saturday. We went to the NYC Botanical Gardens in the Bronx. It was our second visit; we’re members so we’re trying to go more often. I made the plans, which Aaron thanked me for. It was relaxing, fun and so very chill. We hold hands just about everywhere that we go but it has felt even more special of late given all the shit going on in our fucked up country. We went to the Orchid Show, which involved us being herded through a confined green house space, but everyone inside was lovely – except the people that worked there, who were needlessly rude, which everyone commented on. Later we walked around a bit then headed home. We didn’t try to see everything because, again, we plan on going more often.

When we got home we continued our “Re-Trek”. A couple of years ago now, we started watching all of Star Trek together in chronological order. We booked through Enterprise, Discovery and what exists of Strange New Worlds and we made short work of everything up to Star Trek: The Next Generation, but we’ve been dragging our feet for awhile now. Today we watched S03E03 “The Survivors”, which I don’t think I’d seen since it first aired in 1989. There was much that I didn’t remember, but I knew how it ended; likely because this story is retold a few times in Trek. I also remembered that Anne Ryan Haney played a character in it, though I wouldn’t have been able to tell you the actor’s name; I did know that it was the same actor from DS9’s “Dax” & the film “Mrs. Doubtfire”, both of which I love. The episode was okay. I’m much more familiar with the latter half of this season of TNG because I had everything from S03E13 “Deja Q” through Season 6 (?) recorded on VHS and I watched my favorite episodes multiple times. There are a couple of stories in Season 7 that I don’t think I’ve seen more than once or twice though, and not in decades.

I have mix playing which includes “In This Twilight” by Nine Inch Nails. I’ve always loved this song. When it was new I printed up the lyrics and included them in a collage (because, when I don’t I make collages?) – they were placed on my bedroom ceiling right above where I would lay my head.

“Our Church is the Dancefloor; I Put My Faith in the Beat”

I wish there was a club nearby. I’d really like to go dancing, but I suppose I can do it in my apartment. The music is better here anyways.

Another mostly great day. Work on the website. I got outside to get some food. As I mentioned earlier, I watched the new Daredevil: Born Again episode and it being really good made my mood that much better. I had a brief but meaningful text exchange with Jennifer Clemente. Oh! And I spoke to my bio dad David Wright who was out to dinner with my sister Janice and my nephew Jordan, who I also spoke to briefly. I was working some stuff out so I couldn’t chat for long, but it was nice.

And then in another surprise, my other dad, Doug reached out on Facebook messenger. I’d not heard from in months. He doesn’t keep his phone on him so I don’t get to talk to him much, but it was nice hearing from him. I wish he’d reach out more often.

Anyways…I’m going to keep listening to my goth music playlist while I dance around the apartment and get ready for bed. lol It’s that kind of day.

“I’m not seeking penance for what I’ve done, Father. I’m asking forgiveness, for what I’m about to do.”

I watched the latest episode of Daredevil: Born Again (S02E04 “Gloves Off”). This series for me has been extremely problematic. Subpar directing, special effects, a cobbled together feel that has just left me feeling a little underwhelmed. I’d heard reports from sources that I trust that the first 3 episodes this season were bad but that starting with episode 4 things improved drastically. I wasn’t sure I believed the last bit but they were right. At least about this episode.

This is the first really great episode of this series. It was fantastic in ways that previous episodes could have / should have been. The effects and direction were on point. The character dynamics which have been lacking (Matt / Karen) felt far more successful here. Everything seemed of a piece with no crazy editing. This was a such a pleasant surprise! More of this PLEASE! Again, I’ve heard that the final 4 episodes are all very good and someone told me that the finale is “fire” (in a good way) so I’m finally getting excited about this.

They also released a trailer and 2nd poster for the upcoming Punisher Special Presentation, “The Punisher: One Last Kill”, which looks good. I do hope the special explains where Frank has been and how he ends up in the upcoming Spider-Man movie.

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