Tag: Poem

I tried to get back to sleep Sunday morning (10-25-26). We like it cool when we sleep but in winter it can get very cold in our bedroom so I use a few blankets, always using this one that my mother crocheted for me. My mother died a little over 5 years ago, so it means a lot to me.

I took Aaron to his treatment. I get bored waiting for hours, but I’ve been enjoying the drive home. Driving into the city this time was…an experience. New Yorkers have this thing where the lanes on the roads seem to be only suggestions. It’s a little stressful, but not as bad as I expected it to be. Aaron says I’m his hero for going to these appointments with him and giving him the rides home as these are not activities that are easy for me. It’s nice that recognizes and acknowledges this. I need some days where I don’t need to worry about anything like this, really consecutive days, because I have to go to bed very early to be up in the morning for these things and I’m wearing a bit thin on that front. I just need to find a balance. I only have so much energy in a single day due to my disability, and I had been doing really well with exercise and I need time and space for that which has been lagging of late. I’ll try to work that out with Aaron.

I was worn out from that little trip. Like I said, I only have so much energy to spend and these appointments involve driving for an hour, then me sitting in a waiting room for about 2.5 / 3 hours, and then me driving us home. It’s a lot, even though I’m not very active during these sessions, but that’s part of my frustration. I watched quite a bit of television. I watched more SVU, started re-watching AHS (with “Freak Show”, due my new viewing order – I watched the first 1.5 episodes), and I also watched another Avatar episode (S01E09 “The Waterbending Scroll”). I went to bed early again last night because I needed to be up early today for my own appointment.

This morning, Monday, October 26, I caught the A train at 181st and took it down to Penn Station (34th). Exiting the subway my immediate view was of the distant Empire State Building, then I walked by Madison Square Garden. This new appointment was in the same building as my anal pap, but this was a totally different doctor. Today I finally saw an endocrinologist. It only took 3 or 4 years. lol I did try to get in sooner, but there are a whole series of unforeseen hurdles and unexpected delays. My doctor was nice and informative and so now I have another member of my care team, which is extensive, for which I’m grateful.

When I got home, I ate. I had egg whites + a blueberry zucchini smoothie. I changed my clothes. I started a new poem when I was a the doctor’s office, which I finished. Then I went for a walk, stopping by to see Aaron visiting with his former coworker, said hi, then I was off to the park.

I showered when I got home. I had walked my usual 2 miles, plus today’s appointment, and I’d eaten well. I felt good. I relaxed with some Zelda (BOTW). Then decided I’d post this.

Oh! The nurse at the doctor’s office asked me if I was in the fashion industry, and when I went to the park, a woman stopped me to tell me how much she loved my pants. That was nice.

Today’s journal entry title song quote is from “lovely.” by queer synth pop artist and producer Gregory Dillon, from his 2020 EP “Sad Magic”. I’ve curated a large collection of LGBTQ+ inclusive / themed music and I stumbled on Dillon’s work a few years ago. I love this song.