I took my time getting ready for my dietician appointment, but when I was ready, I was happy. I was a little nervous, but Aaron put me at ease and seeing the doctor again was about as good as it was the first time. I saw her 2.5 years ago and she gave me wonderful advice, but my insurance took forever to cover the appointment and it spooked me – only I really need this kind of help, due to my gastroparesis and also for my PTSD, so this was a good day. Aaron spoke up for me anytime I stumbled but I did do a lot of the speaking for myself. He later said how proud he was of me for making the appointment happen so quickly, showing up and being open to this work, which made me feel good. I thanked him also. This was a team effort.
June 10, 2026. Home and getting ready for bed.
My dietician works in the fancy part of the FANCY PART of town. Hard to imagine this being the same island that we live on.
We ordered some groceries. I have cravings for different foods but I’m excited to try some new stuff. This could be very difficult, but sometimes things like this surprises me. And I have my therapist to help and I need to reach out to another therapist about some group work that 2 of my other doctors have recommended I try. So many doctors! But I feel very lucky to have their input.
I took a sleeping pill which is starting to kick in and I need to sleep.
The song quote journal title comes from “Emo Song” by “The Haunted Youth” from their album Boys Cry Too.
I did go to sleep early, after a brief chat with my sister. Anytime I say that I’ve spoken to my sister I mean Janice, my older sister. Our younger sister, Jamie, doesn’t speak to me. I don’t even have her phone #. I don’t know her address. I’ve never seen where she lives. And it’s not just that we’re distant, she’s vicious. And so after many, many years of this seemingly random and horrible behavior, it has come to a point where it feels like I only have one sister. I would not have it be so. But Jamie has given me no other choice.
I slept well. I sometimes have a fruity carbonated beverage on hand but I had water instead. The pain in my back haunted my dreams and woke me a few times. Aaron later told me that I cried out in my sleep. I slept for more than 8 hours. When I did finally get up, I found that while my back still hurts, quite sharply at times, it feels much better than it did yesterday, which is a relief. It doesn’t hurt when I stand still, which was not true yesterday.
June 10, 2026.
I usually make my smoothies with a high protein fiber enriched Boost drink (which equals 1 cup), + 1 cup of blueberries or cherries, a scoop of fiber, a scoop of coffee and a scoop of protein powder – with a splash of unsweetened oat milk. I tried making one without the Boost today (replacing it with a cup of the unsweetened oat milk). Actually, that’s how I first tried making one but I had found the flavor to be a little too intense for me, so this was my second attempt, which went a lot better. That cuts a bit of sugar from my limited intake. I will still drink the Boost but not with the smoothies and not as often. Aaron is against this, and maybe the nutritionist will feel otherwise as well. Aaron says that all the things in the Boost are good for me, but that’s true of water and you can still drown in it or die from drinking too much, via water intoxication / hyponatremia, which is when someone consumes water faster than their kidneys can process it, diluting their blood sodium to abnormally low levels and causing cells—including brain cells—to swell. Maybe I’m being extreme, but I don’t know what else to do. The new smoothie concoction didn’t bother me this time. It’s not as tasty as it was before, but it’s also not anywhere near as offensive as I felt it was the first time. Progress.
I’m wondering if maybe my sugar levels were raised randomly last week. I had a bad few days with my stomach, which is paralyzed, which leads to vomiting. Every day for nearly 25 years. August 13 will mark 25 years. Some days are much worse than others. And having had several bad days, my throat was sore. I bought some Luigi’s Real Italian Ice (Watermelon & Blue Raspberry), which have a lot of sugar in them, which is why I gave them up years ago. The second ingredient on the label is syrup blend (sucrose and corn syrup) followed by apple juice. They’re basically flavored ice with heaps of sugar – but they were something cold that felt good on my throat. I ate 3 of them the morning of my appointment. I also had a sip of cough syrup because it had a cough suppressant and when my throat is irritated from a rough night, I cough a lot. So…I’m wondering if this doesn’t spike my sugar levels and or my results. It’s possible, but I honestly don’t know enough about it to know for sure.
So I’ve already made some (one assumes) healthy changes to my previously improved diet. And my back isn’t as bad. And I have the nutritionist to see today. And I feel really good about how I’ve handled things that would have knocked me off an emotional cliff yesterday and likely would have ended in bloodshed. And now I have questions about what might have sparked this change & I’m hoping this spike was a fluke, but either way it wouldn’t hurt me to try to do better. And so that’s where I am this morning.
Aaron is having a rough morning already. He has had a rough couple of days actually and has been trying to take care of himself but as is often the case, the world collapsed when he wasn’t there. Sometimes in these moments I don’t know what to say to help, but this morning I felt like I was there for him and told him things he needed to hear.
Sometimes our relationship goes very smoothly. Most of the time, really. But it becomes easy to take it for granted. The last 24 hours have shown why we were work well together and that’s always heartwarming. He advocated for me when I got my news yesterday and made sure I would see who I needed to see – even if I did the heavy lifting myself – which was totally what I wanted to do. And this morning with that conversation, it felt like I was the only person who could say these things to him and that I might be the only person he would listen to. I also helped him take a cart full of returns to the UPS store yesterday and contributed to his sleep last night.
Today’s journal entry song quote title is from “I Find You’re Gone” by the German former synthpop band Wolfsheim (Markus Reinhardt and Peter Heppner), from their 2003 album “Casting Shadows”.
