“I’m Down to My Skin and Bone”

This week has been tough. I’ve never done well with the change of the seasons and that’s what this week has felt like to me. Cooler weather can be fun, but we’re in that odd zone where if I go out side and I wear too little, I’m very cold, and if I wear just a little too much, I sweat profusely. Blah. I’m not a fan. But I’ll adjust. I always do.

The pain from my minor surgery on the 18th intensified on Tuesday the 22nd & Wednesday the 23rd, but seemed to disappear completely on the Thursday 24th, and remained gone for most of Friday the 25th before returning that night. Not so bad as it was but not as good as before. We’ll see how it goes today.

I got out for another walk on Wednesday, but I didn’t feel like walking to the park so I walked to an grocery store on Broadway that I used to get my food at every week, for years, only it’s not been years since I stepped into the place. I was curious what the prices were for foods that I usually have delivered these days, and it did seem to suggest that my deliveries are a bargain. I wore my old Hellraiser shirt that I bought in the 90s from Middle Earth in Ann Arbor, Michigan. My friends Paul & Darla had both gotten the same shirt from there. I’m still in touch with Paul and Darla, and Darla says she thinks she still has this shirt too, but Middle Earth has been gone for years.

Outside the grocery store there was an open patch in the sidewalk with flowers growing – which isn’t uncommon in New York. But what is very uncommon, is for those flowers to be Sunflowers. Giant yellow sunshine. We used to have have them growing in our garden on our farm in Michigan and seeing them here in the city made me smile.

I took the long way home, past one of the impressive churches in The Heights. When I got home I showered, and later put on a long sleeve shirt because the bedroom was chilly. Aaron said that I looked cute.

On Thursday I chopped up more Zucchini for our smoothies. It’s weird. A few months ago I’d never had a zucchini and now I have some every day. I can’t say that I crave them, because I don’t taste them at all, but I do like that I get nutrients from the various foods that I eat now, including this one.

Later I went for another walk, to another grocery store and compared prices again. Then, as before, I walked here and there. I ended up at 168th and took the train back to 181st, where I bought some whole wheat pita bread. On the train, a young woman approached me. When people come at me in public I still have this urge to put my guard up, because when people did this in Michigan they were invariably rude. In New York, when people approach me it is always with a compliment. This woman said she was sorry for staring but that my eyeliner was incredible and could I tell her what I use. I thanked her for the compliment and told her that I didn’t know what brand it was because I never pay attention. I buy 3 or 4 eyeliners from a beauty shop less than a block from where I live (she knew the one as soon as I listed my address) and I get that many because they don’t let you buy 1 with a credit card. I told her that I suspect it’s just practice, because I’m old. lol But I wished I’d had a brand to give her as I feel like I didn’t give her anything in value in return for the compliment, other than my thanks. Maybe I made her smile, and that’s something.

I was annoyed most of that day. The season finale of Strange New Worlds is out and the re-release of Avengers: Endgame (Encore), which has new footage and I’d been looking forward to both for months. We initially had plans to see both but I cancelled the Avengers due to my pain levels a few days before – and now I was painless, but having to dodge spoilers, which I hate doing. And SNW, has been so aimless the last few seasons that I’ve started to dread watching it, but the season finale is something I’ve been looking forward to – but to get there, I need to find time to watch 2 other episodes with Aaron and I just didn’t feel up to it. So, minor annoyances, but annoyances none the less. We have tickets to see Avengers: Endgame: Encore on at 1pm today and we can also try to get through Trek.

Friday I felt frazzled. Worn out. Low energy. I’d maintained weight – which is to say, that I hadn’t lost any, but that’s I’d also not gained any, which felt odd. Like I was treading water, or like nothing I was doing mattered. I’d actually gained some weight early in the week, which was annoying, but then I’d lost some of it…but now…nothing. The weather wasn’t fun and, after waking up at 3am, I worked on my website for something like 12 hours with no breaks. I just lost myself in working on a Star Wars viewing order, which is frustrating because I don’t want to share it until it is done, and it’s just taking a lot of time and energy, which I didn’t suspect. I have all these things as Google Sheets, but putting all that information into a new format is tricky and time consuming and my photoshop program was fucking with me for some reason. It was obnoxious. In the end I cranked out a page for the 4 Cat People films so I could post something, and then watched the season premiere of American Horror Story (S13E01 “13”) which was fine, but I feel like this season (which seems just as uneven as most of Ryan Murphy’s work) will land better if I re-watch what I’ve seen (“Freak Show”, “Asylum”, “NYC”, “Roanoke”, “Murder House” + bits of “1984”, “Hotel”, “Double Feature”, “Delicate”, & “Apocalypse”) and also watch what I’ve missed (preferably in the new order I’ve come up with) – as it’s essentially a sequel to everything else they’ve already done. I just don’t know that I can get through all of that. Later, my pain returned. Not as bad as before, but worse than it was. I played some Zelda, (which I’ve been finding very relaxing), read a bit and then went to sleep.

I woke up a few times but got back to sleep. I finally got up around 6am. I weighed myself and was very surprised to see that I’d lost weight again. I would have thought it was the reverse. But I’m actually lower than I have been in years. Again. I don’t like how my mood is so easily affected by my weight. I’ve never been like this. I mean, for years I struggled to keep weight on, and now that I’m losing it, with much more success than others that are close to me, I should be happier. I feel accomplished, but I also don’t really understand some of it. This week, my energy hasn’t been as good as it has at other times in this journey – I’ve exercised less. So I’m not clear how I’m losing weight. I guess I did have a lot of snacks last week, which I’ve mostly curtailed this week, but I wouldn’t imagine it having such a huge effect. I’m at a loss. I don’t understand. And I’d like to understand. I think if I understood how this all worked I could obsess over it less.

Today’s journal entry song quote is from “Ease”, a song by Australian singer Troye Sivan, from his 2015 first studio album “Blue Neighborhood”, which I purchased the day it was released, having randomly discovered his 2014 EP “Happy Little Pill”, which quickly became a favorite. I really only knew him as the kid who’d played James “Logan” Howlett, aka Wolverine, in the 2009 film “X-Men Origins: Wolverine”. But I liked what I heard and I quickly became a fan. I heard something that reminded me of him the other day and I’ve been listening to “Blue Neighborhood” while I’ve been walking this week; it makes me nostalgic for traveling around Manhattan, because I used to listen to it on the train a lot. I don’t usually just play a single song from the album, I usually listen to the whole thing, so it was difficult picking one today, as they’re all sort of swirling in my head. Music gets stuck in my head all the time – sometimes to a degree that annoys me. I’m sure that others experience this, but I also think that most people don’t have this nearly constant soundtrack going on in there heads, or maybe not to the same degree. It feels like a problem. Intrusive thoughts. Ugh.

“My Superstitious Games”

What happened this week? Well, I got outside a few times but stayed in a lot as well, mostly because we keep getting alerts that our air quality is poor and on some days there have been alerts that it could be dangerous for anyone to go outside. Nightmarish stuff.

Wednesday I watched the new X-Men ’97 episode (S02E05 “Weapon X, Lies, and DVDs”) and another of the original animated series (S03E19 “Love in Vain”) – which means I have 2 seasons left of the original show and 4 more of the current season of the newer program. Later that night I had a bit of a freakout about food. I wanted to cut for the first time in a long time, and many of the things I would normally do to ride that wave out weren’t possible. It was incredibly hot outside. Our water was being worked on so I couldn’t take a shower. And I couldn’t actually tackle food because the water line is in the kitchen, so there was a guy in there working on it, and the counters were covered with his tools. It was tricky, but I was able to communicate with Aaron, who was wonderful.

Once I’d calmed down, we started watching Season 3 of Heartstopper. I watched the initial season in a single sitting before getting Aaron into it. We binged Season 2 together the day it was released but I’ve put off watching Season 3 because I knew it had a major storyline about disordered eating – and I was worried that could be triggering (which it was) – but the film that wraps up the whole series was released today so now’s the time to watch it all.

The thing is, at a certain point, the character in question speaks to his parents about it, having written down his thoughts in advance, and asks for help. I did that too, 30 years ago, in late May of 1996. The character also says that he feels like something horrible will happen if he eats. That was jarring. That’s what happens with me. And I’ve never heard anyone else describe it that way. I told my therapist about this on Thursday and she said she’d also never heard anyone describe it like that. The reason is, the character also has OCD (which I don’t), so he has all these rules in place about how and when he can eat. But that’s where we are different. My disordered eating is the result of trauma, related to food, but the food part is essentially a symptom of my PTSD. Still, it was very similar. And hearing it outloud on a TV show I was crying. And Aaron, who has heard me all this time, he was crying. And we were also both crying because the character’s boyfriend is in a similar position to what Aaron has had to learn and struggle with due to my condition. It really resonated. Due to the ongoing story we watched the season in bursts, rather than in one go, so I could make sure that I was okay. But we finished the last episode a bit ago (On Friday, July 17, 2026) and we’ll watch the movie tomorrow. The season has been rough, but very good and I’m hoping the movie wraps the stories up nicely.

As mentioned already, I saw my therapist (in person) on Thursday. I wore a Catherine Wheel shirt. I’ve really enjoyed getting dressed up and going out lately. Maybe it’s because I’ve lost some weight? Or maybe it’s because I’ve come to the conclusion that wearing sunblock, which I’ve always hated but needed due to my vitiligo, is probably why I look so much younger than basically everyone I grew up with – so I look forward to wearing it now. My appointment went well. I had a lot to talk about with the TV story and how I’d dedicated the black iced tea to my mom the week before. She was surprised that it has been 5 years since my mother died. We’d had 2 or 3 weeks off from each other when I told her originally, and I will always remember her shock that my mother had passed, and how I was dealing with it, and all the things that came with that.

I went to bed early last night. I didn’t really sleep well though, doing my old split shift routine, where I sleep for 4 hours, get up for a few, then lay back down for another couple of hours. It’s fine. I felt rested. And I ate well today. A lot of fruit, veggies, water, smoothies, nuts and seeds. I just ordered some more varieties to try in the coming days. I’m very tired but wanting to finish this before I sleep. I did several collages for my photos section. I wrote a new poem the other day, though I’m not sure I like it. I need to start posting more poetry again soon, and movie reviews. I was doing so well at first but it’s become a bit intimidating; I don’t like trying to find where I left off – I’m so disorganized!

Today’s journal entry title music quote is from “Crank” by Catherine Wheel, from their 1993 album “Chrome”. I didn’t discover the band until 1993, but I found them by randomly picking up their first CD – and they became my favorite group. I also didn’t learn that the second album existed until 1995 when they used to play this song at City Club in Detroit. I was so associated with the song that one of my friends (Steve) came rushing to tell me that my song was being played. I’ve probably shared this song here before and likely will again. Love this band. Love this track. Love this album.

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“Step Inside My Head”

I just took a Xanax. There was awhile, years ago, when I would take them quite often. But just like with other methods that worked for me but were perhaps not the healthiest choice, I’ve severely limited my intake of this drug. For awhile it was a crutch, but now it is a tool that I can allow myself to use when I need it, and tonight I needed it.

I’m stressed. And I’m panicky beyond my circumstances. Aaron’s life is going through some major changes so I’m afraid that I seem selfish to be feeling like this, but that’s one of the contributing factors. His personal stress and his challenges affect my own. I like being stronger for him, but this week there are more issues than I usually have to deal with, and it’s the same for him, though he’s dealing with far more than me and much more gracefully.

Others issues include our upcoming travel. Sometimes I get so nervous before hand and it’s generally worse when I’ve not travelled in a few months. Before I moved to New York I had flown a few times. A trip to Florida. A trip to Las Vegas. A trip to San Francisco. But now we’ve flown so many times that I feel foolish for being nervous at all, but I am. We’ve probably flown to Michigan more than 30 times at this point. We’ve flown to Florida at least 6 or 7. We’ve flown to San Francisco, and London, and Rome, Barcelona and Texas. And thinking about it that way I probably don’t have anything to worry about, and yet I do.

I also feel a bit odd that I didn’t really get out today. Sure, I walked to the front of our building and stood outside a moment, but it’s not the same as walking a mile or two. And I only went out because I wanted to confirm that I could go out and that my desire to stay in wasn’t based in my weird fear of going outside. So that’s what I did. I got outside, I ate, I showered in the cold water. That’s another thing. Something wrong with our water pressure and we don’t have hot water. I’m trying to be an adult about this. So many people don’t even have water and I’m upset that the water isn’t warm enough? I noted earlier that it does keep me from lingering there. I wash and I get out. But I love taking my time in a hot shower. It’s where I do some of my best thinking.

My aide, Celine, who is a saint, is also not here this week. One of her cousins was murdered. It was so horrible! And they’ve had to wait a crazy amount of time for the funeral due to the investigation. And so I hope her travel goes smoothly and that she and her family can find some amount of healing from being together. When she’s not here it becomes even clearer how much she does for me. I’m aware otherwise and very grateful and I always, always thank her and speak well of her to her employers but it’s one other thing that this week is throwing at me.

I’m a whiner. I’m a glass half-empty kind of guy. But I’m trying not to be. Writing this is helping. I try to change the way I think. I try to reshape my thoughts and feelings, without denying them. I feel good that I let myself take the Xanax and that I don’t abuse it. I don’t think I’ve taken any in months, and I certainly haven’t taken a whole pill. But I’ve gotten better at recognizing when I need it and giving myself permission to take it. When I first started treatment with it, nearly 2 decades ago, in Michigan, I would let things get so bad before I took it, that the anxiety would get out of control. I would be shaking and on the verge of collapse. But I don’t let that happen anymore. It helps knowing what the drug can and cannot do for me. There are limits. The drug has limits. I have limits.

Another issue. I’m heading to doctor’s appointment tomorrow. I’ve gotten pretty good at getting to this building in the past, via 2 different trains. I mean, I usually take 2 trains to get there, not that I choose one or the other. But the stop that is near this building is closed. So the second train is pretty pointless. And I’ll need to walk pretty far to get there. There are buses that I could take but I’ve never trusted the bus system here. I find it very difficult to decipher the signage for busses here – but I’ve recently learned that others I trust have the same troubles. And so I will walk. It should take about 30 minutes on the train and then about 20 – 30 minutes of walking to get to the office. And then I get to come back the way that I came. And that will likely be all the walking I do tomorrow. I worry that I’ll get that leg pain again though.

I did get a lot done on my website. It took me hours and I’m convinced this will just make me seem that much more insane: I uploaded 36 more collages of ME. I compulsively make collages of all sorts of things but for my photos section I’ve put over a hundred collages of my face and other bits. It’s excessive. And yet I know that I have thousands more photos. But at least for now I think I’ll take a break from all that. It will give me time to get new pictures. lol Not something I need really, but I do like contrasting new and old photos. I tried to include pictures from the last 6 years in with the rest. We’ll see how that all shakes out. Perhaps I’ll cut way back on the number of collages here and just alternate them every now and again to keep it fresh? I don’t have a lot of feedback to go on, by design. People are such assholes online and I don’t want to have to deal with them, but that means I can’t accept any of the compliments either. Oh well.

I need to pack my backpack up now and get ready for bed. I need to get up by 9 and leave by 10. I’ll probably have a smoothie before I go.

Tonight lyric quote is from “Broken Head” by Catherine Wheel, from their essential 1993 album “Chrome”.

I’d share a link to the song here but Spotify is being shitty again. Which is why I’ve started including these photos and mentions of what the fuck I’m getting my title quotes from.

Edit: It’s Tuesday morning, May 19, 2026. I’ve had my smoothie. And Spotify is working so I’m adding the link to the song:



“Devils Dancing Until Late In My Head There…”

I had a rough night last night. Everything leading up to bedtime was wonderful. But I couldn’t eat until late, and that didn’t go as well as I expected so I didn’t actually get to bed until after 4 and I only slept about 4 hours. But when I got up I worked on the site. Later I played some Zelda. I assumed I was going to pool tonight so I didn’t worry about not getting out. But I got very tired in the afternoon. Instead of taking a nap I went for a walk, which was lovely. The weather was beautiful and the walk was refreshing. Also, this marks 9 consecutive days that I’ve gotten out of the apartment!

Oh. And when I got up I had a smoothie. Later I had a kiwi. Later when I was really hungry I had some garlic bread with chia seeds. I’ve been drinking water. I might have a yogurt in a bit.

When I got home I got changed for the bar, breaking in my new boots, which are pretty comfy when boots that look like this are often painful. But as we left for Boxers, later than I expected, I realized that this was a mistake on my part. If I went to the bar, I would be starving when we got home and I would eat and tonight would likely go the same as last night. So Aaron dropped me off near Starbucks and I walked back home. It was the right call. And I got a whistle from one guy and a clearly interested smile from a woman, and that didn’t suck. lol

So I’ll probably get the makeup off. Possibly have a snack. And I might even just get ready for bed. I need to get some sleep tonight. Wish me luck!

Edit: Ooh. And it looks like in addition to the Punisher special tomorrow – we’ll be getting more Marvel news as well 🙂

The Whale Trilogy

1

Pain radiates
through smoothly shaven flesh,

Unseen skull
in burning wrapping paper,

I skitter to share
what it seeks to prevent…

The years are a bitch
and I ache to betray her…

For words in this gloaming
are enabled by night…

Even when tinged
with the heartbreak of sorrow…

Thoughts freely roaming
until morning sight…

Might seem unhinged
come the light of tomorrow.

2

There was a morning, a day, a hot afternoon
where I thought my life would change…
where my wandering
had finally altered my direction…
but it wasn’t meant to be.
Perhaps every day is like this for others…
but the day I am thinking of,
the day of sex before the sermon,
I believed that I’d finally arrived
somewhere I was meant to be,
only to learn across the years
that I would seldom ever return,
and I wish I would have known
how special that time was,
how precious those moments.

It’s altogether different
yet somehow the same
when watching you
watching whales…
when the music you share
nearly kills me with it’s mournful beauty –
giving me fever chills and death spasms
before my fever breaks
and I’m allowed to dance
in the trance of our shoegazing
dream pop.

In the fever
all that could comfort me
was the seemingly old
but younger woman
with the ghost on the porch…
An echo of that first reading
joining my pain across two different eras.

3

The first would have been discovery,
and on the very brink of puberty
as I stumbled through that sea of trees
to find a validating fiction.

And now the feeling: brotherly,
yet still cherry stink of nudity
as I’m humbled by our deities
to bind an animated friction.

And the proof
it is not fair
but the truth
is he’s out there
begging for money,
trading sex for drugs hungry
while the whales circle round us
tasting sweetly table scraps.

And the lie
if there is one
is that life
is a shotgun
because life hasn’t drowned us
baby please don’t go like that.

Written by Jason Wright
April 19, 2018

For Sean (Mobley) and Steve and Anthony.

Bill & Ben (It’s Them Again)

They struggle through spin,
repeatedly heated,
Spritely ghosting across the years
to inspire long after intentions are forsaken,
forgotten and buried.

The contradictions are too numerous to name
as each star burns to nothing
plummeting from the inverse sky
in a brilliant spark unseen
but heard in echoes of erotic aural bliss.

Written by Jason Wright
February 13, 2018

Me & Bill & Ben & Steve

Steve was a shadow
I swore not to touch.

A slip of a boy
with eyeliner smudged.

That he was forbidden
made him all the more tempting.

Catherine Wheel sang
while I was pretending
that I did not want him,
as if he was nothing…

When behind my closed eyes
we were constantly fucking.

Written by Jason Wright
July 27, 2017

“all I use”

my headphones are broken
already ripped open
could not find the cloth
and I’m running late

don’t know that I want this
can I stand here dressed like this?
goth boy is sweating
panic on train

but breathe and get through this
you know you can do this
you just have to break from
your mind’s lonely cage

I’ll dry and arrive there
Jamie will not care
get it all done
and you’ll be all the rage

Written by Jason Wright
July 27, 2017

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